My son
was diagnosed with autism about a year ago.
At the time he was already part of a state-sponsored program, receiving
in-home therapy from a speech pathologist, an occupational therapist, and a
special educator. His diagnosis didn't
change much in the way of his treatment, aside from adding another educator and
increasing the frequency of the home visits. After over a year in the program,
Oliver has made tremendous progress. His
speech is still delayed, but is becoming more clear, appropriate, and frequent. He initiates social interaction, tries to
make jokes, and is more flexible when faced with unexpected changes. I'm increadibly proud of him and his
accomplishments.
That is
why I get so aggravated by the casual manner in which people react to his
changes. Things like, "I knew he'd
talk when he was ready," or "He's just lazy" or "You are
too easy on him" are so dismissive of all the months of hard work put in
by Oliver, his therapists, and Zak and me.
We have been proactive in seeking treatment and doing everything we
could to make it as effective as possible.
We don't just work with him on his letters or his numbers, we've taught
him how to sign, to communicate with pictures, and now to finally speak. We work with him on his manners, being considerate
of others and their feelings, and appropriate social interactions. For parents with a typically developing
child, these tasks may be part of their routine too, but I don't really know. I only know what it's like to be Oliver's
mom.
We had to
learn how to teach him, how to communicate with him. He's working on processing the world the way
typical people do, but it's still a challenge.
He's not unintelligent by any means.
His problem solving skills are downright uncanny. He thinks outside the box and finds ways to
acheive goals in a manner different from the accepted norm. But he still struggles with some sensory
issues and inappropriate reactions. It's
taken me some time to realise that his tantrums are now normal. He gets upset when he is told no, but his
recovery time is much faster. He no
longer hits or reacts violently when extremely upset. He just cries and crumples to the floor, very
similarly to the other toddler meltdowns I've witnessed in the grocery store or
the library.
I don't
know if Oliver's initial diagnosis was wrong.
At the time, it seemed to fit the way he reacted to the world. And I don't know if early intervention will
have the same results for every child with autism. But I do know that thanks to his teachers,
therapists, and the strategies they have given us, we have formed a fantastic team to facilitate
Oliver's growth and development.
He doesn
not act like the same child from a year ago.
He used to be unable to sit and play for longer than 30 seconds. He ate crayons instead of drawing with
them. He had no concept of pretend play,
was intolerant of changes in routine and attempts to redirect him. He could say "hi" and "bye"
occasionally but not when prompted. Now
he plays with his trains for hours on end.
He sits at a table and draws or colors, scribbles on a chalkboard, and
is learning to write his name. He can
put together a puzzle with multiple pieces, match colors and objects, and
respond correctly to questions. He can
speak in five word sentences and engage in a conversation. What he says is not always clear, but he is
more patient and tries to find other appropriate ways of getting his point
accross. He follows directions and can
be redirected to a different task when necessary.
All of
this did not happen overnight. It took a
lot of patience and understanding on our part, a willingness to learn how his
mind processed the world around him. It
took a lot of patience (a virtue uncommon in most 2 year olds) and
perserverance on his part as well. He
stuck with the work, became more tolerant, and thrived in his environment. He continues to work hard, losing patience
soem days, but for the most part, he keeps at it. His language is developing and becoming
clearer. We have started working on
goals for typically developing preschoolers like counting, identifying letters,
colors, and objects, and potty-training.
We hope to start him in preschool in January.
If you
see Oliver one day, please remember that he is the way he is because we all
worked hard to get there. He didn't just
wake up one day and decide to talk, or suddenly become a 3 year old with an
insane work ethic. It was a gradual
process that has changed our lives forever.